New book for parents of children with down syndrome parents. An american family might well be bankrupted by raising a down syndrome child. Recommended books for families of children with down syndrome. Google scholar sloper p, knussen c, turner s, cunningham c. Theres a lot of misinformation about down syndrome, and for women who have received a prenatal diagnosis and for women who. What are some advice books for fathers of down syndrome. The beauty of raising a child with down syndrome here is there is always a lot of space to play and run around. The seven are now learning to function together as a family as their parents guide each individual to. Its full of uplifting advice and best practices gleaned from hales personal and professional experiences raising a son, now an adult, and 20 years spent tutoring children, teens, and adults.
Dec 27, 2017 the biggest way to heal that wound in his heart is for him to spend time with his sons. Advice, information, inspiration, and support for raising your child from diagnosis through adulthood by jennifer jacob, sikora, mardra and a great selection of related books, art and collectibles available now at. The mediocre moms guide to raising a child with down syndrome or any kid for that matter there are lots of articles out there praising parents as superheroes for raising children with down syndrome or other conditions, but what if youre a mom or dad whos perfectly average. Advice, information, inspiration, and support for raising your child from diagnosis through adulthood ebook written by jen jacob, mardra sikora. I\m working on an article for which will offering advice about raising a child with down syndrome. Separating a son from a down syndrome diagnosis in raising. I had vague fears of what turned out to be outdated. Down syndrome will not be the most interesting thing about your son or daughter. The best down syndrome book resources for parents and. Dec 17, 20 the syndrome is a disability, as she makes clear, not an illness and certainly not a tragedy. Nov 29, 2018 the spring family adopted six children with down syndrome and one with fetal alcohol syndrome. At raising robust readers, we believe in going beyond the alphabet and whole word instruction to provide a reliable foundation in independent reading for adults and children with down syndrome. Remember that raising any child fills your life with unimaginable delight and difficulties.
Jun 16, 2007 in fact, she so enjoyed raising a child with down s that she also adopted a baby girl with down s. The mediocre moms guide to raising a child with down. Top ten books for parenting children with disabilities january 29, 2015 these ten books all make two similar points. Factors related to stress and satisfaction with life in families of children with downs syndrome. Every child, every person, every living thing is unique, in big part, due. The memory keepers daughter by kim edwards, well paint the octopus red by stephanie stuvebodeen, bloom.
Downs syndrome novel tugs at americas heartstrings. It was filled with pictures of children with down syndrome and featured quotes from parents about their experiences and hopes for the future. It is designed to be simple, clear, and consistent to complement our learners strong propensity toward routine, structure, predictability and trust. Learn practical tips to take the best care of your child, your family, and yourself. It is full of practical tips and stepbystep instructions for envisioning their childs future, developing a transition plan and seeing it through. The spring family adopted six children with down syndrome and one with fetal alcohol syndrome. Whats it like raising a child with down syndrome in tanzania. Babies with down syndrome, a new parents guide karen straygunderson great. Confessions of the mom of a child with down syndrome during the teenage years. The joy of raising a child with down syndrome youtube. They have met the expected challenges, such as education and social integration, as well as the unanticipated challenges, such as societal ignorance and family conflict. We realize our loved ones may have special needs, learning disabilities, and cognitive challenges.
Raising a child with down syndrome has its unique joys and challenges. Ndsc is also an authoritative source of information on down syndrome, offering such resources as its new parent package, a collection of materials refined over years to provide new and expectant parents with an initial understanding of the challenges and joysof raising a child with down syndrome. Silver medalist, parentingfamily category babies with down syndrome, the trustworthy guide which has benefited thousands of families since it was first published in 1985, is completely revised and updated in a new, third edition. I used to wish my downs syndrome child had died but not any. Dec 10, 20 tips for raising a child with down syndrome breastfeed as long as possible.
Separating a son from a down syndrome diagnosis in. Your son or daughter may also have begun to notice the differences between themselves and their peers. In the book, the child with downs syndrome is beautiful. When our daughter was first diagnosed with down syndrome at birth, i knew very little about her condition. I have my list of bulletpoints that i would offer, but i\m curious what you all. Covering the best practices for raising and caring for children with down syndrome through age five, this book is invaluable to new parents. Jen is the author and a contributor for unexpected. Because of their weak sucking, these babies require perseverance and expert lactation consultant advice, but brainbuilding with mamas help is the best way to start. As a part of her role, she creates, moderates, and manages small online groups for more than 1,500 new and expectant parents. What its like to have a child with down syndrome duration. Our son stephen is now 26, and as we look back we see things we did right and things we could have done better.
Advice for raising a child with down syndrome thin. The financial and emotional needs of an affected child may be more than they can bear. The contributors educators, medical professionals, adults with down syndrome, and, primarily, parents of children with down syndromealong with editor skallerup, mother of a child with down syndrome. The down syndrome transition handbook helps parents with the enormous and often overwhelming task of preparing a child with down syndrome or other intellectual disability for adulthood. Stories of a down syndrome diagnosis, available globally. The real challenges of raising my child with down syndrome being the mom of a child with down syndrome has its challenges, but i dont think people know all of the challenges. Children with down syndrome aged less than 25 years in 2004 were identified from the idea intellectual disability exploring answers database, a populationbased register of children with intellectual disability in wa. The joy of raising a child with down syndrome king 5. Down syndrome reading program raising robust readers.
The family that adopted six children with down syndrome. But instruction can be easily adjusted and adapted for all ages and ability levels. First is to realize that these children have differences more than disorders and disabilities. Jen jacob is the cofounder and vice president of the down syndrome diagnosis network. Tips on raising a child with down syndrome ask dr sears.
By day mardra sikora balances a patchwork of community, advocacy, work, and family. Books for parents of children with down syndrome 61 books. Raising henry is an important, hopeful book for that reason alone, and its easy to be on ms. Other european countries like demark have followed suit, and the u. As a result, iceland is on its way to eradicating down syndrome. Raising robust readers is personalityperfect for those with down syndrome. As the father of a daughter with ds, i can honestly say that pretty quickly he will realise 98% of raising a child with ds is the same as raising any other c. One of our first publications was a special booklet for new parents. While plenty of parents seem eager to avoid the prospect entirely, talking to those in the throes of raising a child with down syndrome reveals a much different perspective. Downs syndrome novel tugs at americas heartstrings world. With the parents guide to down syndrome, you will have the tools you need to raise a happy, healthy, and thriving child.
The biggest way to heal that wound in his heart is for him to spend time with his sons. The parents guide to down syndrome book by jen jacob. Down syndrome parenting 101 is a savvy book for parents. Its challenging getting past drivethru windows with a child blowing kisses and stealing the hearts of all the employees. Download for offline reading, highlight, bookmark or take notes while you read the parents guide to down syndrome. A reading list for parents of kids with down syndrome. She lives in iowa with her husband and four children. Many teenagers and young people, including people with downs syndrome, struggle with selfesteem to a certain degree. This is rather a book written from a parents perspective. Oct 24, 2017 for all of these parents, raising a child with down syndrome has altered their perspectives as they watch their kids love deeply, accept others unconditionally, express great joy, show genuine concern, and generally think the best of people and situations. And, remember, the current motto of the national down syndrome congress. Down syndrome resources for new and expecting parents. Covering the best practices for raising and caring for children with down syndrome through age five, this book is invaluable to new parents who have welcomed. Discussing future opportunities, including employment and housing options.
Learn your likelihood of having a baby born with down syndrome, as well as some of the issues faced when raising a child with special needs. Raising a child with down syndrome focus on the family. One family, genetic identity and muscular dystrophy. The real challenges of raising my child with down syndrome. Many textbooks have already been written about down syndrome by professionals so i didnt set out to write another one. In the book, the child with down s syndrome is beautiful. Down syndrome parenting 101 is a savvy and inspirational guide for parents, grandparents, and anyone who shares life with a person with down syndrome. The contributors educators, medical professionals, adults with down syndrome, and, primarily, parents of children with down syndrome along with editor skallerup, mother of a child with down syndrome, define down syndrome and discuss adjusting to your baby, medical concerns and treatments for example, 40 to 60 percent have some type of heart. There arent enough childrens books about down syndrome, and this. Aug 28, 20 some great reads about raising a child with down syndrome, including books for siblings and parents see more ideas about down syndrome, down syndrome kids, syndrome. In fact, she so enjoyed raising a child with downs that she also adopted a baby girl with downs.
Including the experiences and advice of parents, this should be one of the first books parents read upon receiving their child s diagnosis. Down syndrome center for parent information and resources. Choosing whether to have a child with down syndrome. Direct health care costs of children and adolescents with. Covering the best practices for raising and caring for children with down syndrome from birth to age five, this book is invaluable to new parents of a baby with. The syndrome is a disability, as she makes clear, not an illness and certainly not a tragedy. A child with down syndrome is just like any other child, needing doctors appointments, backtoschool clothes, and rides to birthday parties. We can no longer predict how far our children will go.
According to the national down syndrome society, down syndrome occurs in one of every 733 live births. Readers might like to note that the information and advice provided in all the down syndrome issues and information development and education series is based on the view that we need to know what specific effects down syndrome has on childrens development in order to develop effective interventions and educational programs. Raising henry is not just a forthright and poetic family chronicle. This book has a little of everything raising a special child, becoming a single parent, etc. Four years later, she looks back and wishes she could have encouraged her.